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Advocacy in the News

PARENTS TO SHARE THEIR GREATEST FEARS: WHO WILL CARE FOR THEIR CHILDREN ONCE THEY’RE GONE?

Families Cannot Be Caregivers Forever — Feb. 26 press conference and Feb. 27 budget testimony

#‎FamiliesCannotBeCaregiversForever

The Families Cannot Be Caregivers Forever campaign that’s been on-going since last December is reaching a critical mass. NYSARC conducted a press conference on Thursday, Feb. 26 at 1 pm at the Legislative Office Building press room in Albany. Joining NYSARC Executive Director Steve Kroll and NYSARC President Laura J. Kennedy were aging parental caregivers sharing their stories as well as State Senator Robert Ortt and Assemblywoman Aileen Gunther. They are asking the Legislature and the Governor to improve the system that allocates services to people with intellectual and other developmental disabilities (I/DD) and designate $30 million to fund an additional 3,500 opportunities for people living at home in need of supports or out-of-home residential care.

Nearly 200,000 people with I/DD in New York State live at home with family caregivers. Of that number, more than 54,000 have family caregivers – usually parents – who are age 60 or older. Many of these aging parents who have provided loving care for many years are no longer able to provide safe and appropriate care for their loved one. Many more parents will be in the same circumstance in the next few years.

Aging parents with adult children with I/DD living at home are fearful of what will happen to their children when they are gone. They have long thought that support would be there when it was needed. Now they fear what they see as an uncertain future.

On Thursday evening at 8 pm, Steve and Laura will appear as guests on Time Warner Cable’s Capital Tonight (YNN – Channel 9) with host Liz Benjamin — available statewide.

On Friday, Feb. 27 from 9:30 am to 12:30 pm, Steve will speak before the Mental Health and Developmental Disabilities Committee during the Joint Legislative Public Hearing on the 2015-2016 Executive Budget Proposal on the topic of “Mental Hygiene”. His testimony will be live streamed from the New York State Senate’s website. NYSARC will have a link to the live stream via its website atwww.nysarc.org.